Representing Chronic Pain Experiences Through Manual and AI-Driven Vignettes From Video Blog Data With Member Checking: Participatory Design Study.

Shehnaz Fatima Lakha^1,2, Peter Pennefather³, Alamgir Khandwala⁴, Deborah I Fels¹

¹Inclusive Media and Design Centre, Ted Rogers School of Managment, Toronto Metropolitan University, 55 Dundas Street W, Toronto, ON, M5G 2C3, Canada, 1 416-979-5000 ext 7110.

²Wellness and Health Enhancement Engineering Lab (WHEEL), Mechanical and Industrial Engineering, University of Toronto, Toronto, ON, Canada.

³Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, ON, Canada.

⁴School of Administrative Studies, York University, Toronto, ON, Canada.

PubMed DOI

Abstract

BACKGROUND: Health care professional-generated vignettes are commonly used to illustrate and analyze patient experiences, shaped through clinical reflection to support provider understanding, training, and practice improvement. However, the subjective interpretation of narratives and the time-consuming manual process limit this approach. As an alternative, patients could record video blogs (vlogs)…

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