Peer-Reviewed Publication
Patient Educ Couns2026;152109771.November 1, 2026Journal Article

Hospice family caregivers' preparedness to provide care during the death vigil.

Debra Parker Oliver1, Todd D Becker2, Joanna Helmkamp3, Jacquelyn J Benson3, Justin D Daniels4, George Demiris5, Patrick White3, Karla T Washington3
1Washington University in St Louis School of Medicine, United States. Electronic address: oliverd@wustl.edu.
2Washington University in St Louis School of Medicine, United States; Silberman School of Social Work at Hunter College, City University of New York. Electronic address: btodd@wustl.edu.
3Washington University in St Louis School of Medicine, United States.
4University of Kansas Medical Center, United States.
5University of Pennsylvania, United States.

Abstract

Family caregivers of hospice patients face numerous demands during their family member's final days of life, including escalating symptom management needs, physical strain, and intense emotional challenges. Informed by preparedness theory and the National Cancer Institute framework for patient-centered communication (adapted for family caregivers), this qualitative descriptive study explored the k…

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