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Peer-Reviewed Publication
J Med Internet Res2026;28e86330.June 15, 2026Journal Article

Approaches to Collect Comprehensive Electronic Patient Data Across Multiple Providers and Payers for Research: Landscape Analysis.

Robert S Rudin1, Nihar Chhatiawala2, Joshua C Mandel3,4,5, William J Gordon5,6, David McCallie7, Daniel Gottlieb4,8
1Health Division, RAND Corporation, 20 Park Plaza, 9th Floor, Suite 910, Boston, MA, 02116, United States, 1 6173382059 ext 8636.
2Health Division, RAND Corporation, Santa Monica, CA, United States.
3Microsoft Research, Redmond, WA, United States.
4Computational Health Informatics Program, Boston Children's Hospital, Boston, MA, United States.
5Department of Biomedical Informatics, Harvard Medical School, Boston, MA, United States.
6Department of Medicine, Brigham and Women's Hospital, Boston, MA, United States.
7Formerly with Cerner Corporation, Kansas, MO, United States.
8Central Square Solutions, Boston, MA, United States.

Abstract

BACKGROUND: The digitization of medical data and advances in interoperability have opened opportunities for research studies to use more comprehensive, longitudinal patient data from multiple sources. As patients often interact with many providers and payers over time, collecting data across organizations may have critical implications for accuracy and bias in study results. US policy has promoted…

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