PD GENEration: An International Parkinson's Disease Genetic Research Study.

Kamalini Ghosh Galvelis¹, Allison A Dilliott¹, Megan Dini¹, Rebeca De León¹, Max Thom¹, Ignacio Azcarate¹, Nicola Bothwick¹, Lark Caboy¹, Anny Coral-Zambrano¹, Kirby Doshier¹, Megan Finke¹, Melissa Nicewaner¹, Sarah Osborne¹, Joshua Ruffner¹, Addison Yake¹, Adolfo Diaz¹, Tatiana Foroud², Anne Hall¹, Laura Heathers², Sarah Woody Lawrence³, Karen Marder⁴, Ignacio Mata⁵, Niccolò E Mencacci⁶, Anna Naito¹, Martha Nance⁷, John Poma¹, Ruth B Schneider⁸, Michael A Schwarzschild⁹, Tanya Simuni⁶, Jennifer Verbrugge², Anne-Marie Wills⁹, Yun Lu³, Harry Gao¹⁰, Ben Casavant¹¹, Cornelis Blauwendraat^12,13, Andrew B Singleton¹³, James C Beck¹, Roy N Alcalay^4,14,

¹Parkinson's Foundation, New York, NY, USA.

²Indiana University School of Medicine, Indianapolis, IN, USA.

³Navitas Clinical Research, Gaithersburg, MD, USA.

⁴Columbia University, New York, NY, USA.

⁵Cleveland Clinic, Cleveland, OH, USA.

⁶Northwestern University Feinberg School of Medicine, Chicago, IL, USA.

⁷Park Nicollet Struthers Parkinson's Center, Minneapolis, MN, USA.

⁸University of Rochester, Rochester, NY, USA.

⁹Massachusetts General Hospital, Boston, MA, USA.

¹⁰Fulgent Genetics, El Monte, CA, USA.

¹¹Tasso Inc, Seattle, WA, USA.

¹²Coalition of Aligning Science (CAS), Chevy Chase, MD, USA.

¹³Global Parkinson's Genetics Program (GP2), Chevy Chase, MD, USA.

¹⁴Tel Aviv Sourasky Medical Center, Tel Aviv, Israel.

PubMed PMC DOI PDF

Abstract

BACKGROUND: PD GENEration (NCT04057794, NCT04994015), sponsored by the Parkinson's Foundation in partnership with Aligning Science Across Parkinson's (ASAP) through the Global Parkinson's Genetics Program (GP2), is an international, observational, clinical research study that offers genetic testing and counseling to people living with Parkinson's disease (PwP) at no financial cost. PD GENEration h…

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