Developing a consumer- and clinician-led evidence-informed research agenda for public neonatal services.

Deanne August¹, Candace Meyles², Lynette Chapple³, Lucy Cooke³, Poliana de Barros Mederios⁴, Timothy Donovan³, Katelyn Effeney⁴, Annelise Jefferies⁴, Mellissa Ikitoelagi⁵, Samantha Ison³, Priyanka Kapadia⁴, Pieter Koorts³, Melissa Malivoire⁶, Margaret R Mclean³, Lisa McKeown³, Melissa M Lai⁷, Lizelle Weber⁴, Roni Cole⁸

¹Department of Neonatology, Women and Newborn Services, Royal Brisbane and Women's Hospital, Herston, Australia; School of Nursing, Midwifery and Social Work, University of Queensland, St Lucia, Australia; School of Nursing and Midwifery, Griffith University, Nathan, Australia. Electronic address: deanne.august@health.qldl.gov.au.

²Women's and Children's Service, Sunshine Coast University Hospital, Birtinya, Australia; Consumer of Women's and Children's Service, Sunshine Coast University Hospital, Birtinya, Australia.

³Department of Neonatology, Women and Newborn Services, Royal Brisbane and Women's Hospital, Herston, Australia.

⁴Women's and Children's Service, Sunshine Coast University Hospital, Birtinya, Australia.

⁵Consumer of Women's and Children's Service, Sunshine Coast University Hospital, Birtinya, Australia; Life's Little Treasures, Queensland Coordination, Brisbane, Australia.

⁶Consumer of Women and Newborn Services, Royal Brisbane and Women's Hospital, Herston, Australia.

⁷Department of Neonatology, Women and Newborn Services, Royal Brisbane and Women's Hospital, Herston, Australia; School of Medicine, University of Queensland, St Lucia, Australia.

⁸School of Nursing, Midwifery and Social Work, University of Queensland, St Lucia, Australia; Women's and Children's Service, Sunshine Coast University Hospital, Birtinya, Australia.

PubMed DOI

Abstract

BACKGROUND: Research is a pillar of neonatal care, with millions of dollars invested towards improving outcomes for critically ill newborns. Traditionally, research programs have focused on primary research, rather than region-specific or family-focused needs, which adds to challenges for practice improvement or local translation. In contrast, research codesigned with families continues to emerge…

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