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Peer-Reviewed Publication
Int J Med Inform2025;195105713.March 1, 2025Journal Article

Towards a Multi-Stakeholder process for developing responsible AI governance in consumer health.

Leon Rozenblit1, Amy Price2, Anthony Solomonides3, Amanda L Joseph4, Gyana Srivastava5, Steven Labkoff6, Dave deBronkart7, Reva Singh8, Kiran Dattani9, Monica Lopez-Gonzalez10, Paul J Barr11, Eileen Koski12, Baihan Lin13, Erika Cheung14, Mark G Weiner15, Tayler Williams8, Tien Thi Thuy Bui16, Yuri Quintana17
1Q.E.D. Institute, New Haven, CT, United States; Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; Yale School of Management, New Haven, CT, United States.
2The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Hanover, NH, United States; BMJ, London, United Kingdom.
3Research Institute, Endeavor Health, Evanston, IL, United States.
4Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; School of Health Information Science, University of Victoria, Victoria, BC, Canada; Homewood Research Institute, Guelph, ON, Canada.
5Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; School of Public Health, Harvard University, Boston, MA, United States.
6Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; Quantori, Boston, MA, United States.
7Society for Participatory Medicine, Boston, MA, United States; HL7® Patient Empowerment Workgroup, Ann Arbor, MI, United States; The BMJ's Patient Advisory Panel, London, United Kingdom.
8American Medical Informatics Association, Washington, DC, United States.
9Architecture & Cloud Enablement Specialist, Google Cloud Healthcare and Life Sciences, New York, NY, United States.
10Cognitive Insights for Artificial Intelligence, Baltimore, MD, United States.
11The Dartmouth Institute for Health Policy and Clinical Practice, Geisel School of Medicine at Dartmouth, Hanover, NH, United States; The Center for Technology and Behavioral Health, Geisel School of Medicine, Dartmouth College, Hanover, NH, United States.
12IBM Research, Yorktown Heights, NY, United States.
13Departments of AI, Psychiatry, and Neuroscience, Icahn School of Medicine at Mount Sinai, New York, NY, United States; Berkman Klein Center for Internet and Society, Harvard Law School, Cambridge, MA, United States.
14Ethics in Entrepreneurship, Los Angeles, CA, United States.
15Department of Population Health Sciences, Weill Cornell Medicine, New York, NY, United States.
16Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; Massachusetts College of Pharmacy and Health Sciences, Boston, MA, United States.
17Division of Clinical Informatics, Beth Israel Deaconess Medical Center, Boston, MA, United States; School of Health Information Science, University of Victoria, Victoria, BC, Canada; Homewood Research Institute, Guelph, ON, Canada; Department of Medicine, Harvard Medical School, Boston, MA, United States. Electronic address: yquintan@bidmc.harvard.edu.
PubMed DOI

Abstract

INTRODUCTION: AI is big and moving fast into healthcare, creating opportunities and risks. However, current approaches to governance focus on high-level principles rather than tailored recommendations for specific domains like consumer health. This gap risks unintended consequences from generic guidelines misapplied across contexts and from providing answers before agreeing on the questions. OBJE…

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