Patient and Public Involvement in Technology-Related Dementia Research: Scoping Review.

Pippa Kirby^1,2,3, Helen Lai^2,3, Sophie Horrocks^2,4, Matthew Harrison^2,4, Danielle Wilson^2,3, Sarah Daniels^2,3, Rafael A Calvo⁵, David J Sharp^2,3, Caroline M Alexander^1,6

¹Department of Therapies, Imperial College Healthcare NHS Trust, London, United Kingdom.

²UK Dementia Research Institute, Care Research and Technology Centre (UK DRI CR&T), London, United Kingdom.

³Department of Brain Sciences, Faculty of Medicine, Imperial College London, London, United Kingdom.

⁴Helix Centre, Institute of Global Health Innovation, Imperial College London, London, United Kingdom.

⁵Dyson School of Design Engineering, Imperial College London, London, United Kingdom.

⁶Department of Surgery and Cancer, Imperial College London, London, United Kingdom.

PubMed PMC DOI PDF

Abstract

BACKGROUND: Technology-related research on people with dementia and their carers often aims to enable people to remain living at home for longer and prevent unnecessary hospital admissions. To develop person-centered, effective, and ethical research, patient and public involvement (PPI) is necessary, although it may be perceived as more difficult with this cohort. With recent and rapid expansions…

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