Mixed-methods research to support the use of new lymphoma-specific patient-reported symptom measures derived from the EORTC item library.

Jessica T Markowitz¹, Flora Mazerolle², Teya Lovell¹, Lisa M Hess³, Paolo B Abada⁴, Antoine Regnault², Nalin Payakachat⁵

¹Modus Outcomes, A Division of THREAD Research, Cambridge, MA, USA.

²Modus Outcomes, A Division of THREAD Research, Lyon, France.

³Eli Lilly and Company, Indianapolis, IN, USA.

⁴Loxo@Lilly, Indianapolis, IN, USA.

⁵Eli Lilly and Company, Indianapolis, IN, USA. npayakachat@lilly.com.

PubMed PMC DOI PDF

Abstract

BACKGROUND: No specific measures exist to assess patient-reported symptoms experienced by individuals with chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) or mantle cell lymphoma (MCL). This study was conducted to elicit patient-reported CLL/SLL- and MCL-related symptoms and their impact on patients' lives. The study qualitatively and quantitatively evaluated sets of conceptual…

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