An Idealized Clinicogenomic Registry to Engage Underrepresented Populations Using Innovative Technology.

Patrick Silva¹, Deborah Vollmer Dahlke², Matthew Lee Smith², Wendy Charles³, Jorge Gomez¹, Marcia G Ory², Kenneth S Ramos¹

¹Health Science Center, Texas A&M University, 8441 Riverside Pkwy, Bryan, TX 77807, USA.

²School of Public Health, Texas A&M Health Science Center, 212 Adriance Lab Rd., College Station, TX 77843, USA.

³BurstIQ, 9635 Maroon Circle, #310, Englewood, CO 80112, USA.

PubMed PMC DOI PDF

Abstract

Current best practices in tumor registries provide a glimpse into a limited time frame over the natural history of disease, usually a narrow window around diagnosis and biopsy. This creates challenges meeting public health and healthcare reimbursement policies that increasingly require robust documentation of long-term clinical trajectories, quality of life, and health economics outcomes. These ch…

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