FAIR data sharing, but what about the RREST? Towards the FAIRRREST Principles in health data sharing.

Susan E Smith¹, Teyl Engstrom², Clair Sullivan³

¹Cardiothoracic Surgery Research Unit, The Prince Charles Hospital, 627 Rode Road, Chermside, Queensland 4032, Australia. Electronic address: Susan.Smith@health.qld.gov.au.

²Queensland Digital Health Centre (QDHeC), University of Queensland, UQ Health Sciences Building, Herston, Queensland 4006, Australia. Electronic address: t.engstrom@uq.edu.au.

³Queensland Digital Health Centre (QDHeC), University of Queensland, UQ Health Sciences Building, Herston, Queensland 4006, Australia; Metro North Health, Herston Rd, Herston, Queensland 4029, Australia.

PubMed DOI

Abstract

Data-driven improvement is essential for advancing healthcare delivery, artificial intelligence applications and achieving a learning health system; yet progress is constrained by persistent challenges in health data sharing and reuse. The vocabulary, governance models and operational processes that shape health data sharing and reuse remain fragmented and insufficiently standardised. The FAIR Pri…

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