Social Media Insights Into Disease Burden in Patients and Caregivers of Myelodysplastic Syndrome: Subcohort Analysis of High-Risk Patients.

Rohit Marwah¹, Subrat Mishra¹, Benjamin Gross¹, Sandra Couturiaux¹, Rico Calara², Eduardo Jose Sabate Estrella², Cosmina Hogea²

¹Definitive Healthcare, 492 Old Connecticut Path Suite 401, Framingham, MA, 01701, United States, 1 5087204224.

²Gilead Sciences Inc, Foster City, CA, United States.

PubMed PMC DOI PDF

Abstract

BACKGROUND: Social media platforms offer valuable insights into patients' experience, revealing organic conversations that reflect their immediate concerns and needs. Through active listening to lived experiences, we can identify unmet needs and discover the real-world challenges that patients and caregivers face. OBJECTIVE: The aim of our study is to develop a reusable framework to collect and a…

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