Using Social Media to Engage and Enroll Underrepresented Populations: Longitudinal Digital Health Research.

Christiana Harry¹, Sarah Goodday^1,2, Carol Chapman³, Emma Karlin¹, April Joy Damian⁴, Alexa Brooks¹, Adrien Boch⁵, Nelly Lugo⁶, Rebecca McMillan⁷, Jonell Tempero⁸, Ella Swanson¹, Shannon Peabody⁹, Diane McKenzie¹, Stephen Friend^1,2

¹4YouandMe, Great Neck, NY, United States.

²Department of Psychiatry, University of Oxford, Oxford, United Kingdom.

³Crohn's and Colitis Foundation, New York, NY, United States.

⁴Moses/Weitzman Health System, Middletown, CT, United States.

⁵Evidation Health, San Mateo, CA, United States.

⁶Washington University, St. Louis, MO, United States.

⁷University of California San Diego Health, San Diego, CA, United States.

⁸RespirAI US Inc, Omaha, NE, United States.

⁹Dana-Farber Cancer Instituite, Boston, MA, United States.

PubMed PMC DOI PDF

Abstract

BACKGROUND: Emerging digital health research poses roadblocks to the inclusion of historically marginalized populations in research. Exclusion of underresourced communities in digital health research is a result of multiple factors (eg, limited technology access, decreased digital literacy, language barriers, and historical mistrust of research and research institutions). Alternative methods of ac…

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