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JAMA Netw Open2024;7(8):e2427073.August 1, 2024Journal Article

A Protocol for the Inclusion of Minoritized Persons in Alzheimer Disease Research From the ADNI3 Diversity Taskforce.

Ozioma C Okonkwo1, Monica Rivera Mindt2,3, Miriam T Ashford4,5, Catherine Conti4,5, Joe Strong1, Rema Raman6, Michael C Donohue6, Rachel L Nosheny5,7, Derek Flenniken4,5, Melanie J Miller4,5, Adam Diaz4,5, Annabelle M Soto3, Beau M Ances8, Maryam R Beigi9, P Murali Doraiswamy10, Ranjan Duara11,12,13, Martin R Farlow14, Hillel T Grossman15, Jacobo E Mintzer16, Christopher Reist17,18,19, Emily J Rogalski20, Marwan N Sabbagh21, Stephen Salloway22, Lon S Schneider23, Raj C Shah24, Ronald C Petersen25, Paul S Aisen6, Michael W Weiner4,5,7,26,27,28,
1Department of Medicine and Wisconsin Alzheimer's Disease Research Center, University of Wisconsin School of Medicine and Public Health, Madison.
2Department of Psychology, Latin American Latinx Studies Institute, and African and African American Studies, Fordham University, Bronx, New York.
3Department of Neurology, Icahn School of Medicine at Mount Sinai, New York, New York.
4Northern California Institute for Research and Education, Department of Veterans Affairs Medical Center, San Francisco.
5VA Advanced Imaging Research Center, San Francisco Veteran's Administration Medical Center, San Francisco, California.
6Alzheimer's Therapeutic Research Institute, University of Southern California, San Diego.
7Department of Psychiatry and Behavioral Sciences, University of California, San Francisco.
8Department of Neurology, Washington University in Saint Louis, Saint Louis, Missouri.
9Department of Neurology, David Geffen School of Medicine, University of California, Los Angeles.
10Departments of Psychiatry and Medicine, Duke University School of Medicine, Durham, North Carolina.
11Wein Center for Alzheimer's Disease and Memory Disorders, Mount Sinai Medical Center, Miami Beach, Florida.
12Herbert Wertheim College of Medicine, Florida International University, Miami.
13Alzheimer's Disease Research Center, University of Florida College of Medicine, Gainesville.
14Department of Neurology, Indiana University Health, Indianapolis.
15The Alzheimer Disease Research Center, Mount Sinai School of Medicine, New York, New York.
16Medical University of South Carolina, Ralph H. Johnson VA Healthcare Center, Charleston.
17MindX Sciences Inc, Indianapolis, Indiana.
18Science 37 Inc, Durham, North Carolina.
19Department of Psychiatry, University of California Irvine, Long Beach.
20Department of Neurology, University of Chicago, Chicago, Illinois.
21Alzheimer's and Memory Disorders Division, Department of Neurology, Barrow Neurological Institute, Phoenix, Arizona.
22Memory and Aging Program, Butler Hospital, Alpert Medical School, Brown University, Providence, Rhode Island.
23Department of Psychiatry and Behavioral Sciences, Department of Neurology, Alzheimer's Disease Research Center, Keck School of Medicine of USC, Los Angeles, California.
24Department of Family and Preventive Medicine and the Rush Alzheimer's Disease Center, Rush University Medical Center, Chicago, Illinois.
25Alzheimer's Disease Research Center, Mayo Clinic College of Medicine, Rochester, Minnesota.
26Department of Radiology and Biomedical Imaging, University of California, San Francisco.
27Department of Medicine, University of California, San Francisco.
28Department of Neurology, University of California, San Francisco.
PubMed PMC DOI PDF

Abstract

IMPORTANCE: Black or African American (hereinafter, Black) and Hispanic or Latino/a/x (hereinafter, Latinx) adults are disproportionally affected by Alzheimer disease, but most research studies do not enroll adequate numbers of both of these populations. The Alzheimer's Disease Neuroimaging Initiative-3 (ADNI3) launched a diversity taskforce to pilot a multipronged effort to increase the study inc…

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