Health AI Central
Share:
Peer-Reviewed Publication
Genet Med2022;24(3):509-511.March 1, 2022Editorial

Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG).

Robert G Best1, George Khushf2, Sara Schonfeld Rabin-Havt3, Ellen Wright Clayton4, Theresa A Grebe5, Jill Hagenkord6, Scott Topper7, Jaime Fivecoat8, Margaret Chen9, Wayne W Grody10, 11
1School of Medicine Greenville, University of South Carolina, Greenville, SC.
2Center for Bioethics, University of South Carolina, Columbia, SC.
3Montefiore Medical Center, Albert Einstein College of Medicine, Bronx, NY.
4Vanderbilt University Medical Center, Nashville, TN.
5Phoenix Children's Hospital, College of Medicine, The University of Arizona, Phoenix, AZ.
6Optum, Eden Prairie, MN.
7Color Genomics, Burlingame, CA.
8School of Medicine Greenville, University of South Carolina, Greenville, SC; Patient Advocate, Greenville, SC.
9GeneDx, Gaithersburg, MD; Homer Stryker M.D. School of Medicine, Western Michigan University, Kalamazoo, MI.
10Divisions of Medical Genetics and Molecular Diagnostics, Departments of Pathology & Laboratory Medicine, Pediatrics, and Human Genetics, UCLA School of Medicine, Los Angeles, CA; The UCLA Institute for Society and Genetics, Los Angeles, CA.
11American College of Medical Genetics and Genomics, Bethesda, MD.
PubMed DOI

Create a free account to keep reading

Free members get 10 full research views every month across publications, clinical trials, FDA clearances, adverse events, and NIH grants. No credit card required.

Create Free AccountSign In

Want unlimited research access? See Pro plans

Data Accuracy Notice: Research intelligence on Health AI Central is aggregated from public sources (PubMed, ClinicalTrials.gov, FDA, NIH, CMS, and others) and refreshed nightly. Classifications and derived metrics are produced by automated methods described in our Methodology. We recommend verifying critical data points against the primary sources before making decisions.